LGDA Europe

Support. Educate. Hope.

The LGD Alliance Europe is the European organisation for patients with lymphangiomatosis and Gorham’s disease. We want to connect patients, family, clinicians and researchers affected by and dedicated to these rare diseases in Europe. Together we can find the the strength to deal with lymphangiomatosis and Gorham’s disease.



Provide support, education and hope to patients and families affected by lymphangiomatosis and Gorham’s disease. That is our mission.

Just as important is to promote basic and clinical research on the cause of lymphangiomatosis and Gorham’s disease and support the development of effective diagnosis, identifying the effective treatment and ultimately a cure for these diseases. Read more




2007 LGD Alliance (United States)

2010 LGD Alliance Europe

2011 Alfie’s Trust (LGD Alliance United Kingdom)

2015 LGD Alliance Nederland

2016 LGD Alliance Belgium

More history