European research

The Lymphatic Malformation institute (LMI) has funded a genetic and genomic analysis in patients affected by Gorham’s disease and lymphangiomatosis at the Institute of Medical and Molecular Genetics (INGEMM) of Madrid, Spain. Read more…

Dr. J. Roessler fromt the University Children’s Hospital Freiburg, Germany published an article in november 2015. Citation: Rössler J, Saueressig U, Kayser G, von Winterfeld M, Klement GL. Personalized Therapy for Generalized Lymphatic Anomaly/Gorham-Stout Disease With a Combination of Sunitinib and Taxol. Journal of Pediatric Hematology/Oncology. 2015;37(8):e481-e485. doi:10.1097/MPH.0000000000000436.

The American based LGDA has a full list of worldwide research