Help support the LGDA-UK

As a non-profit organisation, in order to achieve our goals, we have to raise money.  As a small organisation, we don’t qualify for any government funding – all monies raised comes from donations made by our families and supporters.

Funds are vital to enable us to continue supporting patients and their families and move forward with research, here in the UK and around the world.  Fundraising isn’t just about raising the money it also helps to raise awareness to the wider public of our very rare diseases, lymphangiomatosis (GLA), Kaposiform Lymphangiomatosis (KLA), Gorham Stout disease (GSD) and Central Conducting Lymphatic Anomaly (CCLA).  

With your help, we can make a difference. 

Start raising funds today!

Fundraising can be quite daunting if you haven’t done it before. Check out some great fundraising tips and ideas to get you started. If you have an idea that is not listed, let us know. We may be able to help make it happen! LGDA-UK uses the Virgin Money Giving Facility to help make everyone’s life easier when donating online.

Or simply donateMake a one-off donation, or set up a monthly payment.  Every donation, no matter how big or small, counts. 

Money raised stays with the LGDA-UK until a suitable grant application is received and agreed by the Board of Trustees.

Become a volunteer

We would welcome your help.  If you have some free time and are interested in getting more involved with the organisation you are welcome to join our online volunteer meetings.  Meeting dates are posted on our Facebook page.  The meeting will be used to inform you about our work and areas of the organisation that we need help with – patient support, science, communication, fundraising. There are also opportunities for free education for new patient advocates. If this is something you can help us with, please get in touch.

Shop on the internet? Then use EasyFundraising, Amazon Smile and eBay.


Did you know that when you shop online you can donate to LGDA-UK at no extra cost to yourself? It’s really simple – please follow the instructions below and you will make a huge difference to us.  All major shopping stores and websites are registered with  Follow the link and the simple steps below before shopping online and you will automatically donate a percentage of your purchase towards LGDA-UK.

You need to first follow some simple registration steps:

  1. Go to Easyfundraising and click on ‘Register as a User’
  2. Find an organisation
  3. Click on A and scroll to ‘Lymphangiomatosis and Gorham’s Disease Alliance UK’
  4. Enter your email address, name and make up a password
  5. Then log in from the home page.

Amazon Smile

Sign up to and then select ‘Lymphangiomatosis and Gorham’s Disease Alliance’ to receive a percentage of your net purchase price.  There is no extra cost to you or charity for this.


Are you a seller on eBay?  eBay for Charity is a programme that helps people to list items on eBay to benefit charities.  eBay sellers can donate between 10% to 100% of their final sale price to a registered charity.  You can find out more at eBay for Charity  Just remember to choose LGDA-UK as your favourite charity.