Lymphatic Anomalies Registry
The Vascular Anomalies Center at Boston’s Children’s hospital has established a registry for patients all over the world with rare and complicated lymphatic conditions, such as lymphangiomatosis and Gorham’s disease.
The Lymphatic Anomalies Registry is seeking to collect clinical data from patients from any country that could improve our understanding of these diseases, including what complications to expect, which therapies are more effective than others, predictors of disease stability and/or recurrence and inheritance patterns.
The major goal of this registry is to improve knowledge about these diseases towards the design of clinical trials of lymphatic diseases in the future. Register here.
Please join the International LGDA Registry for lymphatic malformations as well.