Become a donor

The LGDA is trying to establish an agreement with a biorepository firm.

A biorepository firm should be able to facilitate the collection, storage, and distribution of samples of blood and tissues donated by patients and healthy volunteers necessary for research, to investigators, at no cost to the patient. As with information entered into the LGDA Registry, all samples donated to the biobank will be secured and de-identified; the samples will be made available to only to authorized researchers – those seeking to discover and develop treatments for lymphangiomatosis and Gorham’s disease.