Friday November 11

Meet & greet with volunteers and attendees at the hotel bar/grand café starting at 20:00.


Saturday November 12

In the time-table you can find the activities for this day.  Between 11:30 and 16:15 there will be parallel sessions offered with a variety of very interesting medical, social and psychological themes.

 If you don’t want to follow (all) the parallel sessions, feel free to use the time to meet other patients and family members or just take a break. There will be a kid’s program parallel to the plenary and smaller sessions. (Grand)parents are welcome to watch and play with the (grand)kids at the kid’s room.

 There will be a € 20,00 registration fee for adults (18 and older) to be paid during registration.



Time Room 1 Room 2 Room 3
09:00 Registration

09:30 Welcome
– Lex van der Heijden & Aaike van Oord
09:45 CMTC
– Lex van der Heijden
Lymphangiomatosis & Gorham’s Disease
– Dr. Jochen Roessler
10:45 Special Guest
11:00 To parallel sessions

11:30 – 12:30  WEVAR: from past to present. Blood vessel deviations
– Dr. Peter de Laat
The power of the patient
– Drs. Cees Smit
Workshop stress management
– Drs. Jos van Erp
12:30 Lunch

14:00 – 15:00  Workshop self image and self trust in visual difference
– Dr. Wouter van der Schaar
Genetics anno 2016: with research searching for new questions
– Dr. Maaike Vreeburg
LGD Alliance session
– To be determined
15:00 To parallel sessions

15:15 – 16:15 Title to be determined
– Dr. Hester Langeveld
Meeting German speaking persons
– Dirk & Jule Exner
Active yoga – Silvia Bongers
16:30 Closure
– Lex van der Heijden & Aaike van Oord
16:45 – 17:30  Snacks and drinks
* fresh and warm stroopwafels at parking lot
18:30 – 20:00  Pancake dinner

You can join us for a typical pancake dinner at an old farm nearby. We will try to carpool so everyone who wants to join, can! Adults pay € 17,00 and children 12 and younger pay €10,00. This is including drinks.


Sunday November 13 (LGD Alliance Europe only)

This morning you can enjoy your included breakfast from 8:00 until 10:30. After check-out we gather in the lobby at 11.30. Some of you may need to say goodbye already, others may join us for either a walk nearby through farmland or a visit to a Christmas market/Garden center  across the hotel. At 13.00 we can meet for lunch for those who are interested (hotel or elsewhere at your own expense).


Go back to conference overview.