Agenda
Friday November 11
Meet & greet with volunteers and attendees at the hotel bar/grand café starting at 20:00.
Saturday November 12
In the time-table you can find the activities for this day. Between 11:30 and 16:15 there will be parallel sessions offered with a variety of very interesting medical, social and psychological themes.
If you don’t want to follow (all) the parallel sessions, feel free to use the time to meet other patients and family members or just take a break. There will be a kid’s program parallel to the plenary and smaller sessions. (Grand)parents are welcome to watch and play with the (grand)kids at the kid’s room.
There will be a € 20,00 registration fee for adults (18 and older) to be paid during registration.
Programme
| Time | Room 1 | Room 2 | Room 3 |
| 09:00 | Registration | ||
| 09:30 | Welcome – Lex van der Heijden & Aaike van Oord |
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| 09:45 | CMTC – Lex van der Heijden |
Lymphangiomatosis & Gorham’s Disease – Dr. Jochen Roessler |
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| 10:45 | Special Guest – |
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| 11:00 | To parallel sessions | ||
| 11:30 – 12:30 | WEVAR: from past to present. Blood vessel deviations – Dr. Peter de Laat |
The power of the patient – Drs. Cees Smit |
Workshop stress management – Drs. Jos van Erp |
| 12:30 | Lunch | ||
| 14:00 – 15:00 | Workshop self image and self trust in visual difference – Dr. Wouter van der Schaar |
Genetics anno 2016: with research searching for new questions – Dr. Maaike Vreeburg |
LGD Alliance session – To be determined |
| 15:00 | To parallel sessions | ||
| 15:15 – 16:15 | Title to be determined – Dr. Hester Langeveld |
Meeting German speaking persons – Dirk & Jule Exner |
Active yoga – Silvia Bongers |
| 16:30 | Closure – Lex van der Heijden & Aaike van Oord |
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| 16:45 – 17:30 | Snacks and drinks * fresh and warm stroopwafels at parking lot |
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| 18:30 – 20:00 | Pancake dinner | ||
You can join us for a typical pancake dinner at an old farm nearby. We will try to carpool so everyone who wants to join, can! Adults pay € 17,00 and children 12 and younger pay €10,00. This is including drinks.
Sunday November 13 (LGD Alliance Europe only)
This morning you can enjoy your included breakfast from 8:00 until 10:30. After check-out we gather in the lobby at 11.30. Some of you may need to say goodbye already, others may join us for either a walk nearby through farmland or a visit to a Christmas market/Garden center across the hotel. At 13.00 we can meet for lunch for those who are interested (hotel or elsewhere at your own expense).
