Finding a physician

Are you having trouble finding a doctor for yourself or your loved one?

Because lymphangiomatosis and Gorham’s disease are vascular anomalies that can affect multiple systems with many variables, the multidisciplinary approach used in Vascular Anomalies Centers (VACs) is often necessary for diagnosis and treatment. Most VACs are located in pediatric hospitals in large metropolitan areas, but some also accept adults and most will review the cases of patients of any age. And there are pediatric doctors who will act as consultants for the primary physicians of adult patients.

The LGD Alliance has compiled a list of physicians and centers around the world that have experience diagnosing and treating patients with different aspects of lymphangiomatosis and Gorham’s disease. Specialties include pediatrics, orthopedics, surgery, pulmonology, hematology, oncology, thoracic surgery, maxillofacial surgery, endocrinology and many others.


Please know that the Boston Children’s Hospital will review any case.

Contact Lisa Klepper for your case review.



If you need help to locate a physician and or center experienced with your particular situation, contact us at