For patients and family

How can we help you?

Have you or has a family member been diagnosed with lymphangiomatosis or Gorham’s disease? You must have a million questions. Or none because you don’t know where to start. We are here to help you and your family finding the support you need, providing you and your doctors with knowledge and to have hope for the future.

Help me understand lymphangiomatosis.

Help me understand Gorham’s disease.

Help me deal with this disease.

Help me share my experience with someone.

Help me find a medical professional.

Help me to stay informed about this disease.

Please take a look at our website or send us an email at We will offer you the best help we can.