The VascERN (European Reference Network on Rare Multisystemic Vascular Diseases, specifically the VASCA working group) wrote a statement on Covid-10, initated by patient advocacy groups in Europe and the US.
COVID-19 statement VASCA_20200323.pdf
Patient organisation Hevas started with an USA document that was written by several patient organisations from the USA together with the group of Denise Adams from Boston.
It is also to be downloaded from the VASCERN.eu website.
We wish everybody to stay safe and healthy.