Skype call for European volunteers

All volunteers will meet again online next week Sunday, October 2nd, 20:00h (CET). On the agenda are general plans to find more patients in the EU, stimulating research and the first patient conference 11-13 November. We are still open for new volunt
Read More

First European patient conference, November 2016

We are proud to announce our first European patient meeting will be in November 11-13 in Leusden, Netherlands. A unique moment for patients in Europe and the LGD Alliance Europe. There will be time to meet and get to know each other. And on Saturday
Read More