Dat zijn de drie belangrijkste doelen. Ieder van jullie willen we graag ondersteunen, van de kennis voorzien en natuurlijk hoop geven voor de toekomst. Samen kunnen we de kennis en de kracht vinden om te leven met lymphangiomatose en de ziekte van Gorham.
De LGD Alliance Nederland vertegenwoordigt de LGD Alliance Europe in Nederland.
De LGD Alliance Belgium vertegenwoordigt de LGD Alliance Europe in België.
Nieuws van de LGD Alliance Europe is vooral in het Engels. This is the time of year when the LGDA focuses on two major events. Our annual #LGDAwareness Day on May 26 and the Million Dollar Bike Ride. Through our social media channels, you will have seen that the Million Dollar Bike was due to take place on the The VascERN (European Reference Network on Rare Multisystemic Vascular Diseases, specifically the VASCA working group) wrote a statement on Covid-10, initated by patient advocacy groups in Europe and the US. COVID-19 statement VASCA_20200323.pdf Patient Gorham-Stout disease (GSD) is characterized by progressive bone destruction and proliferation of lymphatic vessels. In 2016, Andrea Del Fattore, PhD, and Andrea Bartuli, MD, and their team at Bambino Gesù Children’s Hospital, in Rome, Italy, were
#LGDAwareness Day and the Million Dollar Bike Ride.
Corona virus, information for patients
Dissecting the Mechanism of Bone Loss in Gorham-Stout Disease
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