Welcome to the LGDA-UK

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Formerly known as the Alfie Milne Lymphangiomatosis Trust, the LGDA-UK works together with our national partners, the LGD Alliance Europe, to provide support and information to families affected by lymphangiomatosis (GLA), Kaposiform Lymphangiomatosis (KLA), Gorham Stout disease (GSD), and Central Conducting Lymphatic Anomaly (CCLA).

We aim to promote and support services in the United Kingdom that are of benefit to those we are seeking to help, this includes referring individuals to and making them aware of, additional groups, organisations and programmes.

Research is essential to know what causes conditions like GLA, KLA, GSD, and CCLA and to help find effective treatment.  Funds raised are used to support research projects and patient support projects all over the world.  We follow a formal application process to make sure we are using our supporters’ money in the best way possible.

The Board of Trustees is made up of a small group of volunteers who meet regularly to discuss where best to direct the efforts of the LGDA – UK.  The charity has been a registered with the Scottish Charity Regulator (OSCR) since May 2012. The latest copies of our Annual and Financial Reports can be found below. All previous copies can be found here.

2019-20