Lymphangiomatosis & Gorham's Disease Alliance, nonprofit foundation dedicated to patient support, advocacy, and research to find effective treatments and cures for those affected by the lymphangiomatosis and Gorham's disease. Our sister organization, with whom we coordinate all the efforts for the benefit of the patient community.
LMI Research - Lymphatic Malformation Institute, nonprofit organization whose mission is to improve the clinical care of patients with Lymphangiomatosis and Gorham-Stout syndrome by funding research focused on identifying effective therapies for treating these rare disorders of the lymphatic system.
ALEG, asociación lucha contra la enfermedad gorham, a patient organization located in Barcelona, Spain with aim to help, psychologically and financially, patients all over the world affected by the Gorham’s disease by putting them in contact with appropriate doctors.
EURORDIS, Europe Organization of Rare Diseases, an European, non-governmental, patient-driven alliance representing more than 434 rare disease organizations in over 43 countries.
Orphanet, The portal for rare diseases and orphan drugs
Rare Disease UK, an UK association for people with rare diseases and all who support them