Links

www.lgdalliance.org
Lymphangiomatosis & Gorham's Disease Alliance, nonprofit foundation dedicated to patient support, advocacy, and research to find effective treatments and cures for those affected by the lymphangiomatosis and Gorham's disease. Our sister organization, with whom we coordinate all the efforts for the benefit of the patient community.

www.gorhams.org
ALEG, asociación lucha contra la enfermedad gorham, a patient organization located in Barcelona, Spain with aim to help, psychologically and financially, patients all over the world affected by the Gorham’s disease by putting them in contact with appropriate doctors.

www.eurordis.org
EURORDIS, Europe Organization of Rare Diseases, an European, non-governmental, patient-driven alliance representing more than 434 rare disease organizations in over 43 countries.

www.orpha.net
Orphanet, The portal for rare diseases and orphan drugs

www.raredisease.org.uk
Rare Disease UK, an UK association for people with rare diseases and all who support them