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Walk for lymphangiomatosis

Little Ethan in UK was diagnosed with the lymphangiomatosis at the age of seven months. The family faced the same struggle as the families of most newly-diagnosed patients: no well-proven treatments, no guarantee of hope and no cure. Instead of just waiting they decided to do something, try their best to find help for Ethan and at the same time raise awareness on lymphangiomatosis. Ethan’s dad, Nick,  is about to do fundraising military-style ‘tab’ – a 1500 mile walk around the UK during the 6 weeks school summer holidays of 2011.

This even is not organized by us, but we at LGD Alliance - Europe support and encourage the effort of this family in raising awareness on lymphangiomatosis. You can read more at walkforlymphangiomatosis.webeden.co.uk

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