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December 2018

Expert Clinic GLA/GSD/KLA

December 20
La Paz Hospital Madrid, Spain + Google Map

Dr. Lopez-Gutierrez at La Paz Hospital in Madrid (Spain) offers an expert clinic for our patients. What can you expect as a patient? Dr. Lopez-Gutierrez and his team will review your clinical current status, recent x-ray exams, genetic background (even free genetic studies on patients with no mutations diagnosed are possible) and a therapeutic evaluation. (In case of patients needing special X-ray exams - lymphatic MRI and intranodal lymphangiography, these will have to be organized at a later date). In order…

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February 2019

Rare Disease Day 2019

February 28, 2019

And the Rare Disease Theme 2019 is: Bridging Health and Social Care Rare Disease Day 2019 is on 28 February! Be part of a global movement calling for the coordination all aspects of care to achieve better lives for people living with a rare disease.

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March 2019

General Meeting LGD Alliance Europe

March 3, 2019 @ 20:00 - 22:00

Always wanted to join, but not sure how? This is your chance to see how the LGD Alliance Europe tries to offer support, educate people and offer hope for the future by looking into research. The board and team leaders meet monthly. But four times a year we invite you to listen, discuss and help us be the best we can. So, join us for our quarterly meeting with our volunteers on Skype. Convinced? Send an email to info@lgdalliance-europe.org and…

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May 2019

LGD Awareness Day 2019

May 26, 2019

Mark your calendars! LGDA Europe and our American partner LGDA are pleased to announce the establishment of an official Worldwide Awareness Day of May 26. Purpose The purpose of this day: Raise awareness Share experiences May 26 was selected for the awareness date in honour of LGDA Founder Jana Sheets, who was born on that day in 1974.   Actions Talk and listen to us. Make a donation. Share! Use #LGDAwarenessDay on Twitter!

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June 2019

General Meeting LGD Alliance Europe

June 2, 2019 @ 20:00 - 22:00

Always wanted to join, but not sure how? This is your chance to see how the LGD Alliance Europe tries to offer support, educate people and offer hope for the future by looking into research. The board and team leaders meet monthly. But four times a year we invite you to listen, discuss and help us be the best we can. So, join us for our quarterly meeting with our volunteers on Skype. Convinced? Send an email to info@lgdalliance-europe.org and…

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September 2019

General Meeting LGD Alliance Europe

September 1, 2019 @ 20:00 - 22:00

Always wanted to join, but not sure how? This is your chance to see how the LGD Alliance Europe tries to offer support, educate people and offer hope for the future by looking into research. The board and team leaders meet monthly. But four times a year we invite you to listen, discuss and help us be the best we can. So, join us for our quarterly meeting with our volunteers on Skype. Convinced? Send an email to info@lgdalliance-europe.org and…

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December 2019

General Meeting LGD Alliance Europe

December 1, 2019 @ 20:00 - 22:00

Always wanted to join, but not sure how? This is your chance to see how the LGD Alliance Europe tries to offer support, educate people and offer hope for the future by looking into research. The board and team leaders meet monthly. But four times a year we invite you to listen, discuss and help us be the best we can. So, join us for our quarterly meeting with our volunteers on Skype. Convinced? Send an email to info@lgdalliance-europe.org and…

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May 2020

ISSVA 2020

May 12, 2020 - May 15, 2020

The 23rd International workshop of ISSVA (International Society for the Study of Vascular Anomalies) will take place in Vancouver, British Columbia in Canada.

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