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Febbraio 2019

Rare Disease Day 2019

Febbraio 28

And the Rare Disease Theme 2019 is: Bridging Health and Social Care Rare Disease Day 2019 is on 28 February! Be part of a global movement calling for the coordination all aspects of care to achieve better lives for people living with a rare disease.

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Marzo 2019

General Meeting LGD Alliance Europe

Marzo 3 @ 20:00 - 22:00

Always wanted to join, but not sure how? This is your chance to see how the LGD Alliance Europe tries to offer support, educate people and offer hope for the future by looking into research. The board and team leaders meet monthly. But four times a year we invite you to listen, discuss and help us be the best we can. So, join us for our quarterly meeting with our volunteers on Skype. Convinced? Send an email to info@lgdalliance-europe.org and…

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Maggio 2019

LGD Awareness Day 2019

Maggio 26

Mark your calendars! LGDA Europe and our American partner LGDA are pleased to announce the establishment of an official Worldwide Awareness Day of May 26. Purpose The purpose of this day: Raise awareness Share experiences May 26 was selected for the awareness date in honour of LGDA Founder Jana Sheets, who was born on that day in 1974.   Actions Talk and listen to us. Make a donation. Share! Use #LGDAwarenessDay on Twitter!

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Giugno 2019

General Meeting LGD Alliance Europe

Giugno 2 @ 20:00 - 22:00

Always wanted to join, but not sure how? This is your chance to see how the LGD Alliance Europe tries to offer support, educate people and offer hope for the future by looking into research. The board and team leaders meet monthly. But four times a year we invite you to listen, discuss and help us be the best we can. So, join us for our quarterly meeting with our volunteers on Skype. Convinced? Send an email to info@lgdalliance-europe.org and…

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Million Dollar Bike Ride

Giugno 8

The 2019 Million Dollar Bike Ride (MDBR) is on Saturday, June 8, 2019 in Philadelphia! Save the date! The LGDA is already planning our 5th year of participation in the 2019 UPenn Million $$$ BikeRide.  Our riders’ efforts and our generous supporters have raised, with matching funds, more than $600, 000 for GLA/GSD & KLA research in the 4 years of our participation. Perhaps you will join us as a rider and/or supporter in 2019!  For further information contact John Fay, 2019…

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Settembre 2019

General Meeting LGD Alliance Europe

Settembre 1 @ 20:00 - 22:00

Always wanted to join, but not sure how? This is your chance to see how the LGD Alliance Europe tries to offer support, educate people and offer hope for the future by looking into research. The board and team leaders meet monthly. But four times a year we invite you to listen, discuss and help us be the best we can. So, join us for our quarterly meeting with our volunteers on Skype. Convinced? Send an email to info@lgdalliance-europe.org and…

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Dicembre 2019

General Meeting LGD Alliance Europe

Dicembre 1 @ 20:00 - 22:00

Always wanted to join, but not sure how? This is your chance to see how the LGD Alliance Europe tries to offer support, educate people and offer hope for the future by looking into research. The board and team leaders meet monthly. But four times a year we invite you to listen, discuss and help us be the best we can. So, join us for our quarterly meeting with our volunteers on Skype. Convinced? Send an email to info@lgdalliance-europe.org and…

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Maggio 2020

ISSVA 2020

Maggio 12, 2020 - Maggio 15, 2020

The 23rd International workshop of ISSVA (International Society for the Study of Vascular Anomalies) will take place in Vancouver, British Columbia in Canada.

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