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Emily’s Story

“Emily is my strength, my hero, and my Warrior!” Written by Kayleigh, Supporter, United Kingdom “Emily is my strength, my hero, and my Warrior!” Updated

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Mental Health Series

Register Now!  Join our insightful webinar series focused on empowering patients and their families with valuable knowledge and self-help techniques to address mental health issues

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LGD Awareness Day – May 26th

LGD Awareness Day is an opportunity to raise awareness of complex lymphatic anomalies (CLAs).  To help connect patients and their families to peers, networks of

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Newsletter February 2023

Celebrating Rare Disease Day We are Many – We are Strong – We are Proud Having something wrong with you, feeling ill, facing a difficult

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