International LGDA Registry

 Help unlock the mysteries of lymphangiomatosis and Gorham’s disease.

 

When you register as a patient in the International LGDA Registry for Lymphatic Malformations you are helping researchers worldwide unlock the mysteries of lymphangiomatosis and Gorham’s disease to find a treatment and a cure. For more detailed information about the LGDA Registry and to join, please go to the registry website www.lgdaregistry.org.

 

We hope you will decide to join the LGDA Registry. Every individual who joins makes a vital contribution toward furthering the mission and goals of the LGDA and helping all of those affected by rare lymphatic and osteolytic bone diseases.

 

Should you have any questions send us an email: coordinator@lgdaregistry.org.

 

Please join the Lymphatic Anomalies Registry at Boston’s Children’s hospital as well.