LGD Alliance in the UK

alfie_logo_2015LGD Alliance Europe is represented in the UK by the Alfie Milne Trust. Since 2016 the Alfie Milne Trust is on it’s way to become a full member of the LGD Alliance Europe.

Alfie’s Trust was set up in September 2011 by Alfie’s parents to raise awareness of this rare disease and raise funds for research. In May 2012 Alfie’s Trust became a registered charity. We will continue to raise money to help fund research being carried out through the Lymphangiomatosis and Gorham’s Disease (LGD) Alliance Europe and the LGDA in America.

The Alfie Milne Trust is the representative of patients in the UK. In close collaboration with scientists, for example in Great Ormond Street Hospital (GOSH), initiatives for research are being developed and implemented.

Follow Alfie’s Trust on Facebook: facebook.com/alfiemilne.lymphangiomatosistrust.9

 


 

News from the Alfie Milne Trust

     


    Contact

    If you have any queries, comments or suggestions about our work or would like to talk to us about fundraising ideas then we would love to hear them. Please contact us using the following address: www.alfiemilne.org.uk/contact