LGD Alliance in the UK
Alfie’s Trust was set up in September 2011 by Alfie’s parents to raise awareness of this rare disease and raise funds for research. In May 2012 Alfie’s Trust became a registered charity. We will continue to raise money to help fund research being carried out through the Lymphangiomatosis and Gorham’s Disease (LGD) Alliance Europe and the LGDA in America.
The Alfie Milne Trust is the representative of patients in the UK. In close collaboration with scientists, for example in Great Ormond Street Hospital (GOSH), initiatives for research are being developed and implemented.
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News from the Alfie Milne Trust
If you have any queries, comments or suggestions about our work or would like to talk to us about fundraising ideas then we would love to hear them. Please contact us using the following address: www.alfiemilne.org.uk/contact