Archive for January 31, 2016

Put on your running shoes! RunBalmoral

With only 87 days until Runbalmoral 2016, we urge you to sign up now so not to be disappointed (www.runbalmoral.com to register). Places are going fast. Join Team Alfie and help to raise money to improve the lives of those suffering from Lymphangioma
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Skype meeting next Sunday

Next Sunday the LGDA Europe volunteers will have a Skype meeting at 20.00 CET. Would you like to join? Every two months interested people and regular volunteers meet on line and discuss our ambitions and research plans. We invite anyone to join the c
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February 29, 2016 is Rare Disease Day! Read more about this year’s theme and slogan

Theme: Patient Voice Slogan: Join us in making the voice of rare diseases heard 2016 marks the ninth year that the international rare disease community celebrates Rare Disease Day. On 29 February 2016, people living with or affected by a rare disease
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