Questi sono i nostri tre obiettivi principali, al fine di fornire a ognuno di voi l’aiuto, la conoscenza e la forza per affrontare la linfangiomatosi e la malattia di Gorham.
Le notizie sulla LGD Alliance Europe sono generalmente pubblicate in inglese.
This is the time of year when the LGDA focuses on two major events. Our annual #LGDAwareness Day on May 26 and the Million Dollar Bike Ride. Through our social media channels, you will have seen that the Million Dollar Bike was due to take place on theAltre notizie
The VascERN (European Reference Network on Rare Multisystemic Vascular Diseases, specifically the VASCA working group) wrote a statement on Covid-10, initated by patient advocacy groups in Europe and the US. COVID-19 statement VASCA_20200323.pdf PatientAltre notizie
Gorham-Stout disease (GSD) is characterized by progressive bone destruction and proliferation of lymphatic vessels. In 2016, Andrea Del Fattore, PhD, and Andrea Bartuli, MD, and their team at Bambino Gesù Children’s Hospital, in Rome, Italy, wereAltre notizie