Questi sono i nostri tre obiettivi principali, al fine di fornire a ognuno di voi l’aiuto, la conoscenza e la forza per affrontare la linfangiomatosi e la malattia di Gorham.
Le notizie sulla LGD Alliance Europe sono generalmente pubblicate in inglese.
Barclay et al published an article in the Journal Genetics in Medicine and we got permission from the author to share a link on our website. Purpose: Kaposiform lymphangiomatosis (KLA) is a rare, frequently aggressive systemic disorder of the lymphaticAltre notizie
As the advocacy organization for the rare vascular anomalies of GLA/lymphangiomatosis, GSD, and KLA, the LGDA is aware of the lack of resources for adults with these conditions. We are working on recruiting adult providers but we need hard data fromAltre notizie
This video presents VASCERN, its members and the work that the network does to improve the lives of patients with rare vascular diseases. Subtitles now available in English and French. Additional EU languages will be added soon. How can VASCERN helpAltre notizie