Questi sono i nostri tre obiettivi principali, al fine di fornire a ognuno di voi l’aiuto, la conoscenza e la forza per affrontare la linfangiomatosi e la malattia di Gorham.
May 26 2017 LGDA Europe and our American partner LGDA are pleased to announce the establishment of an official Worldwide Awareness Day of May 26. Purpose The purpose of this day: Raise awareness Share experiences May 26 was selected for the awarenessRead more
Half a million people in Europe are diagnosed with a rare disease every year. No country can meet this challenge alone. European Reference Networks are virtual networks that bring together experts from across the EU. Together, they will tackle complexRead more