Questi sono i nostri tre obiettivi principali, al fine di fornire a ognuno di voi l’aiuto, la conoscenza e la forza per affrontare la linfangiomatosi e la malattia di Gorham.
Le notizie sulla LGD Alliance Europe sono generalmente pubblicate in inglese.
Gorham-Stout disease (GSD) is characterized by progressive bone destruction and proliferation of lymphatic vessels. In 2016, Andrea Del Fattore, PhD, and Andrea Bartuli, MD, and their team at Bambino Gesù Children’s Hospital, in Rome, Italy, wereAltre notizie
Barclay et al published an article in the Journal Genetics in Medicine and we got permission from the author to share a link on our website. Purpose: Kaposiform lymphangiomatosis (KLA) is a rare, frequently aggressive systemic disorder of the lymphaticAltre notizie
As the advocacy organization for the rare vascular anomalies of GLA/lymphangiomatosis, GSD, and KLA, the LGDA is aware of the lack of resources for adults with these conditions. We are working on recruiting adult providers but we need hard data fromAltre notizie