Alfie Milne Trust

Living with the challenges of lymphangiomatosis

Tracy Milne and her son Alfie share their story on facing the challenges of living with lymphangiomatosis head on (page 58). Later in the article Dr. Michael Dellinger tells about his research at the Lymphatic Malformation Institute (LMI). Go to the
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Without patient participation, research cannot be done

RUDY Study UK For anyone that received an invitation to join this study through the LGDA registry but haven’t quite got round to signing up, please take five minutes to listen to an interview with Dr. Kassim Javaid talking about what the Rudy S
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GREAT ORMOND STREET HOSPITAL RESEARCH NEWS

A sequencing panel for lymphangiomatosis samples arrived today at GOSH, and the experiment will be running soon. This takes a bit of time to run and quite a bit of time to analyse but we wanted to share this piece of exciting news with our patient co
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