These are our three main goals to provide each and every one of you with the help, the knowledge and the strength to deal with lymphangiomatosis / Gorham’s disease.
The Alfie Milne Trust represents the LGD Alliance Europe in the UK.
This video explains European Reference Networks. One of those ERN’s is VASCERN. Ange van der Velden from the LGDA Europe participates as a patient representative in the Patient Work Group of VASCERN.Read more
May 26 2017 LGDA Europe and our American partner LGDA are pleased to announce the establishment of an official Worldwide Awareness Day of May 26. Purpose The purpose of this day: Raise awareness Share experiences May 26 was selected for the awarenessRead more
Half a million people in Europe are diagnosed with a rare disease every year. No country can meet this challenge alone. European Reference Networks are virtual networks that bring together experts from across the EU. Together, they will tackle complexRead more