These are our three main goals to provide each and every one of you with the help, the knowledge and the strength to deal with lymphangiomatosis / Gorham’s disease.
The Alfie Milne Trust represents the LGD Alliance Europe in the UK.
Half a million people in Europe are diagnosed with a rare disease every year. No country can meet this challenge alone. European Reference Networks are virtual networks that bring together experts from across the EU. Together, they will tackle complexRead more
Imagine if the best specialists from across Europe could join their efforts to tackle complex or rare medical conditions that require highly specialised healthcare and a concentration of knowledge and resources. That’s the purpose of the EuropeanRead more
A little less than a month ago the LGDA Europe held its first meeting in Leusden, the Netherlands. A total of 11 patients and 31 family members got to meet each other, sharing their stories and listening to the sessions at the conference held in Leusden.Read more