Support. Educate. Hope.
These are our three main goals to provide each and every one of you with the help, the knowledge and the strength to deal with lymphangiomatosis / Gorham’s disease.
LGD Alliance Europe in the United Kingdom
The Alfie Milne Trust represents the LGD Alliance Europe in the UK.
Meet Lazlo - a Dutch hero
Dutch hero Lazlo shared his story in 2012 on Dutch TV. Now he shares it with the world in the hope to reach out to find more patients. Our thanks goes out to broadcasting company BNN, Zodiac Nederland, the program Je zal het maar hebben (this means:Read more
Fellowship Maria Gnarra
In February this year, Alfie’s Trust funded a 6 week Fellowship to allow Maria Gnarra to join the Dermatology Department at Great Ormond Street Hospital to work on clinical projects on paediatric vascular and lymphatic anomalies. Maria Gnarra hasRead more
Million Dollar Bike Ride funds three studies
The Lymphangiomatosis & Gorham’s Disease Alliance (LGDA) and the Lymphatic Malformation Institute (LMI) are proud to announce the three projects selected to receive the LGDA-LMI 2015 MDBR Rare Disease Research Grants. The LGDA and LMI joined togetherRead more